Request to NHS England re: interim policy on EAP for SMA Type 1

NHS England Announces Interim Policy on EAP for SMA Type 1

An open letter has been sent to NHS England asking for the policy on EAP for SMA Type 1 to be reconsidered and restrictions removed with respect to age and eligibility criteria. The letter co-signed by The SMA Trust, along with other patient advocates and clinicians can be read in full below:

Nusinersen letter August 2017

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