Unsatisfactory response from NHS England re: criteria for EAP

NHS England Announces Interim Policy on EAP for SMA Type 1We have now had a reply to the joint letter which was sent from clinicians and patient advocacy groups to NHS England in August, requesting broadening of the criteria for Type I babies to be included in the EAP.  Unfortunately they are not able to change the current ruling so any new decision would need to be based on a further application to their specialised commissioning clinical panel.  This is not a satisfactory solution as far as we are concerned and we will be working with all the signatories and Biogen to pursue this matter as an urgent priority.

For more information

NHS England Response Letter

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